Help Susan raise money

Over the last year we have had so much fun getting to know our close friend’s daughter Parker. Whenever we come over to their house with our dog Winnie, Parker lights up the room and has the rare ability to make Winnie be calm. Her wonderful personality, humor, and energy are amazing to begin with and more amazing given her Malan Syndrome diagnosis.  We are proud to run The Falmouth Road Race for Parker and all children affected by Malan Syndrome and rare diseases. We are especially proud to support the Genesis Foundation which supports children like Parker and whose volunteers including Parker’s mom Bethanne work tirelessly to help children achieve their full potential no matter their genetic circumstances. We ask for your support in funding The Genesis Foundation to achieve our goal of raising $2,000. Thank you for all of your help in empowering Genesis’ mission to fund and administer services that treat families affected by a rare disease or genetic disorder from conception through adulthood. 

Thank you,

Ben and Susan