Join us to support individuals diagnosed with epilepsy 

MATTY'S MEMORIAL 5K RUN/WALK

AND FAMILY FUN DAY

FOR EPILEPSY 

Saturday, May 27, 2017

Quonset Point - North Kingstown,RI

 

USATF Sanctioned 5k run or walk 

2017 5k t-shirts for the first 300 registrants

Post-race gathering for all Registrants

Cash Prize for top male and top female 5k finisher

Pre-race Family Fun Zone & Matty's Mighty Dash for kids. All dashers will receive a t-shirt & prize! 

 

Registration Fees

5K Runner

Price Increase in 57 days
Mar 16 - May 20 Current Price $25.00
May 21 - May 25 $35.00

5K Walker

Price Increase in 57 days
Mar 16 - May 20 Current Price $25.00
May 21 - May 25 $35.00

Mighty Dasher

Pre School - third graders

Mar 16 - May 25 Current Price $10.00

Race Map

About Matthew Siravo

Matthew Siravo was born on February 18, 1998, the son of Debra and Richard Siravo of Wakefield, Rhode Island. Matthew was a healthy newborn child with no diagnosed medical conditions during most of his first year of life. Ten days before his first birthday, Matty suffered a gran mal seizure during the early morning of February 8, 1999.

Doctors at Hasbro Childrens Hospital performed a comprehensive evaluation and confirmed that Matty suffered an extensive seizure. There was no family history of seizures. Two weeks later, he suffered a second seizure and was taken to a  hospital for treatment. The community hospital was unable to control the seizure and mistakenly caused an infiltration of medicine on the backside of his righthand, which required immediate plastic surgery and intensive care treatment at Hasbro Childrens Hospital. A skin graph from his groin was taken to cover the affected area. 

Matty continued to have seizures that were eventually controlled by medicine. As he grew in age, intervention services helped him make significant progress in his speech and other skills. He was one of the happiest children at the pre-school always smiling, listening to music and saying “hi” to everyone.

In May 2003, Matthew underwent brain surgery at Boston Children’s Hospital. The surgery reportedly went well however, Matthew suffered a prolonged seizure while in recovery, which caused cardiac arrest and massive brain damage. Matthew died peacefully on May 11, 2003, Mother’s Day, surrounded by his family and while his favorite church music played by his bedside.

About us

 

Founded in 1983, EFNE is a nonprofit organization that seeks to provide Help for today and Hope for tomorrow.  We aim to improve the lives of individuals and families impacted by epilepsy and seizures, by providing:

Access to needed services and education;

Outreach to connect people with epilepsy to the Foundation in a manner that meets their needs;

Advocacy with local and state governments to improve legislation and funding for governmental services;

Support for the implementation and advancement of best practices and efficacy to have greater impact and better outcomes; and

Funds to find a cure through funding of research and delivery of new therapies in partnership with Epilepsy Foundation of America.

Top Donors

# Name Amount
1 Debbie Ziadeh $250.00
2 Tony Ormonde $250.00
3 Heather Savoie $250.00
4 Karen Peter $250.00
5 Todd Cronin $250.00
6 Mark Agostinelli $200.00

Top Teams

1

Team Nina

Raised: $5,025.00

2

The Alyssa Rose Team

$3,175.00

Raised

$1,000.00

Goal
3

Team Leah

$2,741.00

Raised

$1,000.00

Goal
4

Team Soph

$1,015.00

Raised

$1,000.00

Goal
5

Team Francesca

$980.00

Raised

$1,000.00

Goal
6

Team Angela

Raised: $705.00

Top Fundraisers

1

Julio Andrade

Raised: $1,730.00

2

Vanessa Dos Santos

Raised: $1,565.00

3

Kate Vincent

$1,196.00

Raised

$1,000.00

Goal
4

Leah Vincent

Raised: $1,065.00

5

Sophia Montanaro

$990.00

Raised

$1,000.00

Goal
6

Valentina Dos Santos

Raised: $835.00

Event Schedule

  • May 27 08:30 AM EDT - Race day volunteer check-in

  • May 27 09:00 AM EDT - Race day registration and check-in

  • May 27 09:00 AM EDT - Kid's Fun Zone activities begin

  • May 27 10:30 AM EDT - Matty's Mighty Dash races begin

  • May 27 11:00 AM EDT - Start of 5k run/walk. Post race festivities at Fat Belly’s Pub will follow

Contact Information

Event Location

615 Callahan Rd, North Kingstown, RI, United States

Click Here to view map