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Cure SMA Canada

Raise money for Cure SMA Canada

Support. Research. Hope.

The mission of Cure SMA Canada is:

To fund the best possible Canadian research in search of a treatment or cure for Spinal Muscular Atrophy.

To support Canadian families and individuals affected by Spinal Muscular Atrophy in every province and territory.

To work closely with CURE SMA (USA) and the Scientific Advisory Board in our selection of recipients of research and trial grant monies.

To offer and supply information to any Canadian requesting it.

To support Canadian families and individuals affected by SMA as newly diagnosed, during the affected person’s lifetime and the family after an affected person passes.

To offer support for activities that bring families and individuals together mutually benefitting all that are involved. (example: the annual SMA conference, SMA Family Camp, Parent’s retreat)

To support individuals with their fundraising activities benefitting Cure SMA Canada.

To supply members with newsletters for the purpose of information, connecting and communication.

To connect families to each other through various methods including our website, social media, through our national office, our newsletter and group activities.

To help families realize they are not alone with the diagnoses of SMA. That Cure SMA Canada is here for them and will support them in any capacity we can. We understand, because we too are affected by SMA or are parents of children born with Spinal Muscular Atrophy.

SMA is the number 1 genetic killer of children under the age of 2. SMA is like ALS in children. 

Charlie-Anne was given 3 months to live at 6 months of age and is turning TEN June 22nd, the day before the race! She is celebrating by rolling 21k ! to raise funds to cure SMA!

Join us and help us raise funds! Prizes for top fundraisers!


Teams

Click on a team below to make a donation.

Recent donors

Recent donors
Date Name Amount
Jun 04 John Pao $100.00
Jun 04 Alice Byron $25.00
Jun 04 Barbara Zubek $50.00
May 30 Katerina Doumakis Have a great run!! :) Undisclosed amount
May 20 John Bennett Good luck Drew! Awesome that you are so involved $100.00
May 17 The Fighting HedgeSparrows $500.00
May 17 Chanel Thanks Chanel!!! $25.00
May 17 Janet Hildebrand $100.00
May 16 Uncle Lucas + Uncle Aaron Fassbender Go Chuckie Go! $50.00
May 16 Nick Scharfe $250.00