Online registration is closed but you can register tomorrow at the race site starting at 7:00 am.
The Run (or Walk) Out Duchenne 5K raises funds to support our mission to end Duchenne muscular dystrophy, a fatal genetic disorder that slowly robs our children and loved ones of their muscle strength. Those with Duchenne are truly in a race against time as their muscles deteriorate further each day. When you join us at Highbanks Metro Park on June 1 to Run Out Duchenne you are supporting our vital work to help fund advancing research, care, and advocacy to help those with Duchenne live longer, stronger lives.
Join us. Every Step You Take Makes A Difference!
** You must be registered by May 27 to be guaranteed an event shirt. **
Registration fees
3.1 Miles - Virtual Participant Closed
Run in Spirit; Support Duchenne Research ; Will receive an Event Shirt
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$25.00
3.1 Miles Closed
Online registration closed-
- Online registration closed
About Duchenne Muscular Dystrophy
Duchenne Muscular Dystrophy is a progressive, muscle-wasting disorder that affects every muscle in the body. DMD is a recessive genetic mutation that occurs on the X chromosome. As a result, it almost exclusively affects boys. Unfortunately for the boys who have been diagnosed with DMD, it is the most severe of all the muscular dystrophies:
- Boys with this disease are diagnosed early, usually between 3 and 5 years of age.
- They lose muscle function quickly; many boys are in wheelchairs by age 10-12.
- They die early, most boys with DMD do not live to their mid-20’s.
- Boys with DMD are unable to produce a functional dystrophin protein. Because they lack this protein, they first lose their skeletal muscle function, and then they lose their smooth muscle function (smooth muscles include the heart and diaphram).
- Duchenne is currently 100% fatal. There is no cure and no truly effective treatment. Occasionally, a young man with DMD may live into his early thirties, but he will be in a wheelchair, he will need assistance breathing and he will live with the constant risk of heart failure.
There is no cure for Duchenne, but there is HOPE. Research is promising, but funds are needed to get drugs into trial and time is not on our side. Our mission to Run Out Duchenne is to not only raise money that will go directly to medical research, but to raise awareness of the severity of this disease.
About HighBanks Metro Park
Highbanks is named for its massive 100-foot-high shale bluff towering over the Olentangy State Scenic River. Tributary streams cutting across the bluff have created a number of deep ravines in the eastern part of the 1,200-acre park. Ohio and Olentangy shales, often containing outstanding large concretions, are exposed on the bluff face and sides of the ravines.
For directions from your location visit Highbanks Metro Park
Course Map
Event schedule
- Sat, June 1, 2019 7:00 AM - Event Day Check-in/Registration Begins
- Sat, June 1, 2019 8:15 AM - Event Day Check-in/Registration Ends
- Sat, June 1, 2019 8:20 AM - Event Formation
- Sat, June 1, 2019 8:30 AM - Event Start
- Sat, June 1, 2019 10:00 AM - Course Closes
Contact information
- Event contact
- Craig Thompson
- Website
- Visit website