Migraine Patient Education Day - NYC - 2020

Miles for Migraine - Patient Education Day

In a continued effort to create awareness about migraine and headache disease, we are holding our second annual

Miles for Migraine Education Day: Creating community and sharing knowledge for people with migraine and other headache disorders, and for their families and loved ones.

THIS WILL BE A VIRTUAL EVENT TO BE HELD ON

SATURDAY, DECEMBER 19TH FROM 11:00AM - 12:00PM EST

The day will be both informational and experiential. Our goal is for the person with chronic migraine and other headache disease to both learn and be supported. Topics will cover coping strategies, advocacy, reducing stigma, research, and medical advancements. There will be time to join with others in a supportive and safe community.

We have invited local doctors and other providers to give lectures and provide opportunity for open dialogue and experiential participation so that the day is not confined to only lectured information.

Keynote Speaker

Jolie grew up in NJ and experienced her first Migraine at the age of 12. Initially misdiagnosed with Chronic Sinusitis, she often missed school, work and social events. Never having a treatment plan that worked managing her pain, she relied on over the counter medication which had little to zero effectiveness.

Later at age of 29 the pain became daily and debilitating. It was four years before a neurologist properly diagnosed her disorder, Hemicrania Continua. At the time there were only 100 diagnosed cases. Although it is rare, it is treatable and luckily the preventative medication taken daily was effective.

Pain free, Jolie built a successful career in urban property and restaurant development whilst raising two children. She spent time, running, skiing and being philanthropic in her community. While Jolie’s daughter was a freshman in college, she began to experience daily migraine pain. and although there is no medical evidence or case reference as to Hemicrania Continua being hereditary, She was also conclusively diagnosed with the same disorder.

Suddenly in 2017 at the age of 48, Jolie’s pain became chronic once more. She was diagnosed with a secondary disorder that mysteriously mimicked the primary disorder but was unfortunately not responsive to any medication. Jolie was debilitated and defeated for the next two years, until she was given a brand new medication which has worked tremendously.

Now at 51 years old, Jolie believes a proper diagnosis is the first step to managing this disease. She recognizes the need for communication within the migraine community whether the person is suffering or not. She no longer takes her relief for granted.