Epidermolysis Bullosa (EB)—"The Worst Disease You've Never Heard Of" —is a rare connective tissue disorder with many genetic and symptomatic variations. All forms share the prominent symptom of extremely fragile skin that blisters and tears with any friction. Boone Studer, was born on August 19th 2020 with this horrible disease. Join us as we walk to raise awareness and funds for research for EB!
Registration fees
Walk for Awareness Closed
We will be starting our walk at 9:30 AM from North Pointe Elementary School in Hebron KY! We will then walk along the sidewalk down 237 to the cross walk at the round about, and back towards the school. From 11:00 AM - 2:00 PM We will have crafters, vendors and food trucks set up for an afternoon of shopping and fun all while raising awareness for EB. REGISTRATION AND CHECK IN BEGINS AT 9
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$30.00Sep 17 - Oct 28
Event schedule
- Sat, October 30, 2021 9:00 AM - Registration & Check In
- Sat, October 30, 2021 9:30 AM - Walk begins
- Sat, October 30, 2021 11:00 AM - Vendor/Craft & Food Trucks
Contact information
- Event contact
- Danielle Pratt
- Phone
- 8599072739
