Help Joelle raise money

In spring of 2020, my nephew, Caffrey, was diagnosed with Duchenne Muscular Dystrophy, a fatal and rare genetic disease that renders his muscles unable to recover from activity. DMD starts with the legs, then all limbs, and ultimately impacts the lungs and heart. There is no cure. People with Duchenne lose the ability to walk by age 12 and have a lifespan in the mid-20s. We can’t afford to wait for a cure. 

My brother and sister-in-law founded Rare Disease Renegades to ensure long, healthy, happy lives for children with rare diseases by funding research for cutting-edge therapies. Technologies like CRISPR have opened a new frontier for rare disease cures, but they cost nearly $2.5 million per child to develop. This is the most promising option facing patients whose time is running out.

I'm running to raise money for Rare Disease Renegades. Caffrey turned 12 in May. My amazing nephew may have lived half his life. With your support, we can accelerate science and cure rare diseases. Your donation will help give these children their best shot at a life-saving therapy.