Help Desiree raise money

Support My Journey

My name is Desiree Parisien. I am 41 years old and I have Spinal Muscular Atrophy type 3. I was diagnosed with SMA at the age of 3.  

This will be the 21st Rebecca Run for Cure SMA Canada. The Rebecca Run has played an integral part in continuing to help individuals and their families living with SMA! 

This will be the first year that I will be joining the Rebecca Run and others within my SMA community, virtually, to raise funds for an organization that is truly near and dear to my heart - Cure SMA Canada+.

Cure SMA Canada's mission is:

* To fund the best possible Canadian research in search of a treatment or cure for Spinal Muscular Atrophy.

* To support Canadian families and individuals affected by Spinal Muscular Atrophy in every province and territory.

* To work closely with CURE SMA (USA) and the Scientific Advisory Board in our selection of recipients of research and trial grant monies.

* To offer and supply information to any Canadian requesting it.

* To support Canadian families and individuals affected by SMA as newly diagnosed, during the affected person’s lifetime and the family after an affected person passes.

* To offer support for activities that bring families and individuals together mutually benefitting all that are involved. (example: the annual SMA conference, SMA Family Camp, Parent’s retreat)

* To support individuals with their fundraising activities benefitting Cure SMA Canada.

* To supply members with newsletters for the purpose of information, connecting and communication.

* To connect families to each other through various methods including our website, social media, through our national office, our newsletter and group activities.

* To help families realize they are not alone with the diagnoses of SMA. That Cure SMA Canada is here for them and will support them in any capacity we can. We understand, because we too are affected by SMA or are parents of children born with Spinal Muscular Atrophy.

I am truly honoured to be affiliated with this very worthy organization. I currently serve as the chair member of Cure SMA Canada's Advisory Committee, as an ongoing advocate, and representative for families within Saskatchewan. 

I've had the opportunity to witness first hand all that Cure SMA Canada has done and continues to do, to fight for our community. They continue to provide me a place where I feel like I am understood and belong;  and not only for myself, but other SMA families throughout our country.

Being that I'll be taking part in the run virtually, I can choose to complete the "run" at any time between July 9th - 23rd. I'll keep everyone posted as to when that will be. Most likely on the nicest and sunniest day, with no wind.  :-)

By sponsoring me today for the Rebecca Run, you are making a difference for all Canadians impacted by SMA, including myself! So thank you from the bottom of my heart for your support. 💜

+ Tax Receipts will be issued by Cure SMA Canada for donations over $10.

https://www.rebeccarun.com/

https://curesma.ca/