My team
My Story…
I am honored to be representing Team Valeria, a foundation for KCNT1 research.
Valeria was born on February 14, 2018 in Switzerland. A few days after her birth, she began suffering from epileptic seizures due to a mutation of her KCNT1 gene. This denied her cognitive and motor development. Her parents, Alexandra and Mario, fought for their daughter and worked with the Yale School of Medicine and neurogenetics from Harvard Medical School (Boston Children's Hospital) to design a medicine to help Valeria and children like her. Unfortunately, Valeria lost her battle against her disease in September of 2021. Though short, Valeria achieved many great things in her life. She helped science take a decisive step in the right direction. When dosed correctly and properly monitored, the drug (Valeriasen) developed for her has a promising future for others. Valeria paid the biggest price, but in return has given others a fighting chance. Please consider donating to an amazing organization. Thank you for supporting #teamvaleria!
Donate to help Sean raise money for The 2022 ASICS Falmouth Road Race’s fundraising campaign.
Recent donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| Aug 19 | Dad | $107.35 |
| Aug 19 | Debra Burke | $27.48 |
| Aug 19 | 50.00 | $54.10 |
| Aug 18 | Emily Orrico | $54.10 |
| Aug 16 | Merrissa & Chris | $145.69 |
| Aug 14 | Derrick and Corinne Genova | $27.48 |
| Aug 14 | Patrick | $50.00 |
| Aug 04 | The Schiebel Family | $54.10 |
| Aug 02 | Helen & Wayne Macri | $107.35 |
| Aug 01 | Valeria Foundation | $107.35 |
