My team
Team Eye and Ear Falmouth 2022
I'm proud to be running for Team Eye and Ear in support of the Ocular Genomics Institute!
Over 20 years ago I was diagnosed at Mass Eye and Ear with Stargardt Disease, a rare inherited macular dystrophy that leads to the loss of central vision. There are roughly 30,000 of us in the US. My vision rapidly changed from age 12-22, at which point I was declared legally blind. Since that point, my vision has mostly stabilized. Unfortunately, there are no current treatments, and an accurate prognosis is still a challenge with there being many variants of the disease.
The Ocular Genomics Institute is working to better understand the underlying genetics of diseases like Stargardts. To date, the team of clinical scientists and researchers have pioneered some of the first gene therapy treatments in the eye, and they continuously build upon the understanding of the many forms of complex genetic eye disease, which will continue to lead to new breakthroughs.
Let's help them accelerate this work!
In 2019 I officially joined Mass Eye and Ear to help lead fundraising efforts for the department of ophthalmology.
Description
Mass Eye and Ear clinicians and scientists are driven by a mission to find cures for blindness, deafness and diseases of the head and neck. Each year, 300,000 people—adults and children—from 80 countries seek care at Mass Eye and Ear and 20,000 of them undergo life-changing surgery.
Mass Eye and Ear is home to the world's largest vision and hearing research centers, offering hope and healing to patients everywhere through discovery and innovation. As a Harvard Medical School teaching hospital, Mass Eye and Ear trains future medical leaders in ophthalmology and otolaryngology through our highly competitive residency and fellowship programs.
Recent donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| Aug 29 | Melissa Paul | $250.00 |
| Aug 16 | Rachel Huckfeldt | Undisclosed amount |
| Aug 16 | Joan and John Miller | $109.85 |
| Aug 15 | Janet and Jim Razulis | Undisclosed amount |
| Aug 08 | Clementine & Audette | Undisclosed amount |
| Aug 06 | Jon and Patty Firger | $109.85 |
| Jul 28 | Dana Grider | $55.35 |
| Jul 18 | Julie Dutcher | $55.35 |
| Jul 14 | Caitlyn Ashton | Undisclosed amount |
| Jul 14 | Krystal Silva | $28.10 |
