My Story…
We are the Brown family. Chase and Colten were both diagnosed with adrenoleukodystrophy ( ALD) in 2021. Chase is 12 years old and has been diagnosed with the Children’s Cerebral form of ALD. Thankfully the progression is self arrested at this time , therefore, we go for MRIs every 3 months to monitor if he is still stable.
Colten has ALD and currently doesn’t show any signs of the cerebral form. We go every 6 months for MRIs to monitor for any signs of activity .
We are so thankful for Dr. Lund and his team at the University of Minnesota for all they do for our sons . The money raised will directly go to Dr. Lund and his research team to find treatments and hopefully one day a cure for this disease.
Donate to help Jenica raise money for Run for ALD, Cure the Boys’s fundraising campaign.