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Help us raise money

For participating in Run for ALD, Cure the Boys

Our story…

John was diagnosed with ALD in the fall of 1997.  Within 60 days of diagnosis, John received his bone marrow from a non-relative donor outside of the United States. In the 24 years since John's passing Franci, Christy and I are very happy to see that many states are now testing newborns for the possible existence of this genetic disease. We also see advantages to new, innovative ALD treatments. First, the patient's own cells are employed. Thus, there is no need to find a matching bone marrow donor. Second is the safety factor (no introduction of a stranger's bone marrow into a child). Third, gene therapy is potentially a permanent lifetime cure because a boy's broken gene is replaced with a perfect replacement gene. We believe that raising funds for continued ALD research is a very worthy cause.                                     

Help us raise money for Knockout ALD

Achievements

Team members

Click on one of our team members below to make a donation.

Recent donors

Donation date Donor name Donation amount
Nov 20 Lauren Hunt $50.00
Nov 19 DeLicia ❤️ Undisclosed amount
Nov 06 Linda Pinnell In Memory of John. Undisclosed amount
Nov 05 Shamina Yasar $100.00
Nov 03 Lisa and Jeff Gordon $5,325.85
Nov 02 Shannon Barbour $27.48
Nov 02 Anonymous We miss you John! $267.10
Nov 02 Tom and Deb Cortopassi $107.35
Nov 02 Susan Cohen and Leonard Shen $100.00
Nov 01 The Callahan/Blum family We miss you John 🍀 $320.35