My Story…
I am running in honor of my daughter Valeria, who passed away on September 5, 2021 at the age of 3. Valeria suffered from a devasting ultra rare disease called "de novo mutation on the KCNT1 Gene". Valeria was a fighter and she has accomplished so much in her life that was way too short. Valeria made friends around the globe, was an advocate and embassador for the ultra rare disease community. She raised money, funded research programs at Harvard University and Yale School of Medicine. Made people work on her own individualized n of 1 drug called "Valeriasen" and was the most beautiful daughter one could have ever imagined at the same time. I miss her every day and I am proud to run for your foundation little angel. Thank you so much for supporting the Valeria Foundation!
Donate to help Mario raise money for The 2023 ASICS Falmouth Road Race’s fundraising campaign.
Recent donors
Donation date | Donor name | Donation amount |
---|---|---|
Aug 19 | Cornelia & Troxler Family | $131.65 |
Aug 18 | Michelle Simon | $55.35 |
Aug 17 | Laura Cornelissen & Drew Messinger | $164.35 |
Aug 14 | Alice & Jakob Schenkel | $218.85 |
Aug 12 | Lory & Paul | $109.85 |
Aug 01 | Emma & Joséphine | Undisclosed amount |
Jul 31 | Tansal Kurtulus | $164.35 |
Jun 15 | The Porters | $109.85 |
May 27 | Tom Riherd | $230.00 |
May 05 | adi | $55.35 |