Skip to main content

Help Sean raise money

For participating in The 2023 ASICS Falmouth Road Race

My Story…

Dear Friends,


I am excited to be running the Falmouth Road Race again on August 20th!


I am honored to be representing Team Valeria, a foundation for KCNT1 research.


Valeria was born on February 14, 2018 in Switzerland. A few days after her birth, she began suffering from epileptic seizures due to a mutation of her KCNT1 gene. This denied her cognitive and motor development. Her parents, Alexandra and Mario, fought for their daughter and worked with the Yale School of Medicine and neurogenetics from Harvard Medical School (Boston Children's Hospital) to design a medicine to help Valeria and children like her. Unfortunately, Valeria lost her battle against her disease in September of 2021. Though short, Valeria achieved many great things in her life. She helped science take a decisive step in the right direction. When dosed correctly and properly monitored, the drug (Valeriasen) developed for her has a promising future for others. Valeria paid the biggest price, but in return has given others a fighting chance. Please consider donating to an amazing organization. Thank you for supporting #teamvaleria!

Donate to help Sean raise money for The 2023 ASICS Falmouth Road Race’s fundraising campaign.


Recent donors

Donation date Donor name Donation amount
Aug 18 Michelle Simon In memory of sweet Valeria $28.10
Aug 17 Joe McCusker Proud of you $164.35
Aug 17 Pat Love ya brotha!! Such a great cause <3 $55.35
Aug 17 Harley & family Enjoy your run Sean ! Harley & family $109.85
Aug 10 The Schiebel Family Good Luck, Sean! $55.35
Aug 09 Mary OMalley Good luck Sean🍀 Mary O. $109.85
Aug 08 Auntie Debbie Go Sean! $28.10
Aug 03 Good luck Sean $55.35
Jul 24 RJ + Sarah Good luck Sean! $109.85
Jul 22 Jenn Rogan $109.85