My Story…
Hi everyone! I am running the Falmouth Road Race again for my son Walker. Walker was diagnosed with Duchenne Muscular Dystrophy shortly after his first birthday.
Duchenne is a rare genetic, processive, muscle-wasting disease. It is the result of a defective gene responsible for producing the key muscle protein, dystrophin. Duchenne causes the muscles in the body to become weak and damaged, leading to heart and breathing muscle failure, and is ultimately fatal. There is currently no cure.
DMD affects 300,000 boys worldwide and 15,000 in the United states, with most using a wheelchair by around the age of 12 and having an average life expectancy in the mid 20s.
I am running for Team Jett. The Jett Foundation empowers people and families impacted by DMD through the development of transformative programming, educational opportunities and ongoing support for every stage of a Duchenne journey.
We are so proud of our guy and hopeful for the future! Please consider donating to support this amazing foundation and all that they do for Duchenne families everywhere.
Description
Thank you for supporting me in the Falmouth Road Race, where I will be raising funds for Jett Foundation.
Jett Foundation extends and enriches the lives of individuals affected by Duchenne muscular dystrophy and other neuromuscular disorders.
They fulfill this mission by partnering with individuals and families through empowering educational programming, transformational direct service experiences, and by accelerating development of life-changing treatments.
Go! for Duchenne events, such as the Falmouth Road Race, encourage families and friends to activate their muscles in support of Jett Foundation and the work we do to provide enriching programs for individuals and families impacted by neuromuscular disorders.
Help me reach my goal of $1,000 by race day--Sunday, August 20, 2023!
Recent donors
Donation date | Donor name | Donation amount |
---|---|---|
Aug 19 | Trever Dumas | $55.35 |
Aug 19 | Melissa Bateman | $55.35 |
Aug 19 | Richard Sayers | Undisclosed amount |
Aug 18 | Pop Pop and Franklin | $218.85 |
Aug 15 | Solecki Family | $28.10 |
Aug 15 | Anonymous | $28.10 |
Aug 14 | Stacey Colantuoni | $109.85 |
Aug 14 | Mia Marchant & family | $109.85 |
Aug 14 | The Falcons | $55.35 |
Aug 14 | Mansfield Little School | $100.00 |