My Story…
My earliest memory is of a headache. I was three, and it ruined my trip to the zoo. Although I was not formally diagnosed with migraine disorder until my 20’s, I believe I have had migraines since childhood. I simply thought my symptoms were what other people meant when they said they have a “headache.”
My official diagnosis is status migrainosus without aura and intractable migraine. I am one of the 1% of those diagnosed with migraines for whom attacks last 72 hours+ (my longest is 44 days). Unfortunately, intractable migraines are also typically resistant to treatment.
Two things I would love people to understand about migraines:
1. It’s not just head pain. For me, a migraine also includes nausea, dizziness, balance issues, aphasia, slower processing speed, difficulty with fine motor skills (typically writing), & blurred vision.
2. A patient can do everything “right” and still suffer.
I have a great support system online, a FB group called Chronic Migraine Warriors. Our team, Migraine Crushers, is participating (in person and virtually) in the Philadelphia Miles for Migraine event October 1. Please consider a show of support to your favorite migraine warrior (me) by supporting our Philly Miles for Migraine team. Funds raised will go to migraine research & the Jefferson Headache Center.
With love,
Dana
Recent donors
Donation date | Donor name | Donation amount |
---|---|---|
Sep 23 | Bre Mulock | $27.48 |
Sep 23 | Anonymous | Undisclosed amount |
Aug 24 | Doug Kane | Undisclosed amount |
Jul 28 | Jackie Linder | Undisclosed amount |
Apr 06 | Facebook Fundraiser | $30.00 |
Mar 02 | Facebook Birthday Fundraiser | $25.00 |
Mar 02 | Facebook Birthday Fundraiser | $105.00 |
Feb 13 | Doug Kane | $27.48 |
Feb 12 | Valerie Terry | $54.10 |
Feb 11 | Dana Mills | Undisclosed amount |