My Story…
Baby Hunter is a spectacular child with an interesting story. After being born without any complications and what appeared to be a typical infancy, he began developing weight gain issues followed by spasms type behavior at 4 months. After realizing his movements and spasms could be epileptic activity, Baby Hunter was seen by a pediatrician at 4.5 months old. The spasms went untreated until we were seen by the GI specialist at LeBonheur Outpatient Center at 5.5 months old. The specialist quickly realized what we already knew, something was terribly wrong. We were admitted to the hospital that day. Within hours of our admission Hunter was diagnosed with Infantile spasms. In addition to this condition, Hunter is siginificantly delayed, has dysphagia, and a suspected visual impairment. After a full genome sequence, his noted issues are caused by a mutation to the BRAF gene. This indicates that Baby Hunter has a rare condition called Cardiofaciocutaneous Syndrome. As of now, his spasms are controlled by seizure medication and the other areay of symptoms are being treated as they arise. I know without a doubt that without the thorough patient care of Hunter by LeBonheur staff, he wouldn't still be with us. I urge you to donate to help save the lives of other children who visit LeBonheur Children's Hospital.
Donate to help Morgan raise money for Le Bonheur Pumpkin Run - Memphis, TN’s fundraising campaign.
Recent donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| Jun 29 | Rebecca Etheridge | $54.10 |
| Jun 25 | Tracey and Todd Bailey | $25.00 |