My Story…
Chase and Colten were both diagnosed with ALD in April 2021. Their journey started when Chase started having his grades rapidly decline, and the next step was an appointment with his family dr. The cycle of tests and dr appointments to find out what the culprit of his grades declining began. The diagnosis of adrenal insufficiency and ALD was made for Chase, and the next step in this process was to have both boys go meet Dr. Lund immediately (Colten because he had a 50/50 chance of having the same diagnosis).
Chase and Colten went through multiple dr appointments that resulted in Chase having Cerebral ALD, Colten having ALD, and both boys have adrenal insufficiency. The MRI showed that Chase's cerebral activity was self-arrested, and it would be monitored every 3 months. The boys made it through a couple of years of monitoring their brain MRIs, and it was in March 2023 that changes were found on Chase's scan that would mean a BMT was needed.
Chase went through the BMT process in May of 2023 and his transplant happened on 5/11/23. The transplant was a very long and hard process, but Chase has shown he can persevere and overcome the challenges in life. The care that Dr. Lund gives to his patients is second to none and gives the hope of living a happy life to these boys. We are so proud of Chase because with the support of his medical team has proven to be one of the only kids to get to go home at Day +91 instead of 100 or more days. This has allowed Chase to be a record setter that shows with the care of Dr. Lund and other medical staff that anything can be achieved.
The boys are continuing to overcome all the medical obstacles they have been dealt in life. Chase, is happy to be back home after 4 months away while undergoing a BMT. The gaming computer and his pets were the things he missed the most about being 12 hours away from home. Colten, is enjoying playing sports, building lego sets, Pokemon, and being an active young man. The boys have shown such resilience in their lives and will continue to fight against this ALD diagnosis!
We want to continue to help raise funds for Dr. Lund and his research team. The hope is that one day there will be more treatment options,research, and awareness for ALD to help those affected live long and happy lives.
Donate to help Jenica raise money for Run for ALD, Cure the Boys’s fundraising campaign.
Achievements
Recent donors
Donation date | Donor name | Donation amount |
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Nov 15 | Your grace and courage are awesome. | Undisclosed amount |