My Story…
We love our Charlie so much, he was born at 38 weeks on January 24, 2023, at 8 am and was whisked away from us almost immediately and was in the NICU at AHN Wexford for 2 weeks. He was then transferred to the Children’s Hospital Pittsburgh.
A few weeks after arriving at the Children’s Hospital Charlie was diagnosed with Prader-Willi Syndrome (PWS). If you choose to Google what this is, know that the information found online is very outdated. That is why fundraising is so important for all of the upcoming advancements in PWS research and treatment. This is a lifelong diagnosis that with the help of God we will manage together!
We will be receiving the majority of his care at the Children’s Hospital of Pittsburgh and we would like to give back in some way! They helped us through the most challenging time of our lives while Charlie was a patient in their NICU for 2 months.
I will be running this Marathon for Charlie! Any donation you can make to support his care would be greatly appreciated!
Description
As part of Team Children's, my participation in the 2023 Pittsburgh Marathon supports UPMC Children's Hospital Foundation.
Funds support the patients and families served by UPMC Children's Hospital of Pittsburgh. Last year UPMC Children's Hospital had over 1 million patient visits and many of the programs, initiatives, and resources that make UPMC Children’s so special are funded by philanthropic gifts. Things like distraction therapy which provides patients something else to focus on during their medical procedures, the Child Life Department which provides many activities to create a sense of normalcy for hospitalized children, and the Free Care Fund which covers the cost of medical care for those that cannot afford it. These areas are not covered by insurance, yet are critically important to helping families face the many challenges that accompany a child’s treatment.
Please consider donating to support the patient champions at UPMC Children's! You can donate directly on this page or send a check to the address below and make a note that you are sponsoring my efforts.
UPMC Children’s Hospital Foundation
Attention: Pittsburgh Marathon
4401 Penn Ave
Pittsburgh, PA 15224
Recent donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| Apr 26 | Michael and Susan Burkley | $107.35 |
| Feb 22 | Erin | $27.48 |
| Feb 13 | The Shumates | $80.73 |
| Feb 11 | Kate Townsend | $54.10 |
| Feb 11 | The Schramke's | $54.10 |
| Jan 15 | Joe Kashurba | $54.10 |
