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Help us raise money

For participating in Butterfly Run Ottawa 2024

Our story…

Orrin passed away unexpectedly at home when he was only 3 days old. 

Almost 3 years later and his biome has been regrown in a lab in a hospital in Amsterdam… His cells have been sent to hospitals in Germany by the metabolic specialists at CHEO. 

Orrin died of an inborn error of metabolism - or at least that is the very best guess and we miss him every single day.

Through the doctors at CHEO, we participate in the care for rare program, which is essentially an international database of some of the rarest and unknown sicknesses or diseases. Hopefully one day this research will benefit other families and babies.

Help us raise money for Roger Neilson Children's Hospice

Team members

Click on one of our team members below to make a donation.

Recent donors

Donation date Donor name Donation amount
Oct 10 Kerri & Liam $50.00
Oct 05 Amanda Ploeg $26.41
Oct 05 Terri $26.41
Oct 01 Christine Taylor $52.83
Aug 29 Lucie Dauth Undisclosed amount
Aug 20 Anonymous $26.41
Aug 12 Michelle Love you Tuesday, Jamie, Orrin and Hadrian 💗 $105.65
Aug 11 Meghan $26.41
Aug 11 Jody $105.65
Aug 11 Janet Falle $105.65