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The Progeria Research Foundation

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Progeria is a rare, fatal, “rapid-aging” disease. Without the discovery of new treatments, all children with Progeria will die of heart disease at an average age of just 14.5 years. The Progeria Research Foundation (PRF) was founded in 1999 in response to the complete lack of progress being made to help children with Progeria. Our mission: to discover treatments and the cure for Progeria and its aging-related disorders, including heart disease. Today, PRF continues to be the only organization in the world solely dedicated to this mission.

The Progeria Research Foundation is thrilled to once again be part of the Falmouth Road Race Numbers for Nonprofits program!

Thanks to our dedicated runners, PRF’s Falmouth Road Race team has raised nearly $200,000 gross since 2015, bringing us closer to additional treatments and the cure for Progeria.

Let’s make this year the best yet - support TEAM PRF today!

If you're interested in joining our team, contact Jennifer at jgillespie@progeriaresearch.org for details.

The Progeria Research Foundation's Mission:
To discover treatments and the cure for Progeria and its aging-related disorders, including heart disease.

What is Progeria?
Progeria, also known as Hutchinson-Gilford Progeria Syndrome (HGPS), is a rare, fatal genetic condition of accelerated aging in children. Without lonafarnib treatment, all children with Progeria die of the same heart disease that affects millions of normally aging adults (arteriosclerosis), but at an average age of just 14.5 years.

Together, we WILL find the cure!

Teams

Click on a team below to make a donation.

Recent donors

Recent donors
Date Name Amount
May 22 Anonymous Undisclosed amount
May 11 Donation Have a great run Eric! We love you! Aunt Liz and Uncle Greg $55.35
May 08 Shannon Woohoooo go Emma’s $25.00
May 07 Michelle Happy early birthday! 🏃‍♀️‍➡️ $22.65
May 07 Kitty HBD! $11.75
May 07 Jason Run Emma Run $55.35
May 07 Katie and Ray Go Meg!! So proud of you!! Love you!! 🏃🏼‍♀️🩵💛🏃🏼‍♀️ Undisclosed amount
May 07 Dorothy Kangas Persevere in the training! Just think 1 mile extra per week on those long runs and you'll be fit as a fiddle in no time! $55.35
May 07 Kelly M Undisclosed amount
May 07 Anonymous Undisclosed amount