My Story…
I am running in honor of my daughter Valeria, who passed away on September 5, 2021 at the age of 3. Valeria suffered from a devasting ultra rare disease called "de novo mutation on the KCNT1 Gene". Valeria was a fighter and she has accomplished so much in her life that was way too short. Valeria made friends around the globe, was an advocate and embassador for the ultra rare disease community. She raised money, funded research programs at Harvard University and Yale School of Medicine. Made people work on her own individualized n of 1 drug called "Valeriasen" and was the most beautiful daughter one could have ever imagined at the same time. I miss her every day and I am proud to run for your foundation little angel. Thank you so much for supporting the Valeria Foundation!
Description
Thank you so much for your generous donation to the Valeria Foundation!
Recent donors
Donation date | Donor name | Donation amount |
---|---|---|
Aug 23 | Sabrina Deakin | $109.85 |
Aug 18 | Gotti | $109.85 |
Jul 23 | Boca | Undisclosed amount |
May 21 | Emmanuel Kostakis | $109.85 |
May 19 | Eschäbächler | $109.85 |
May 15 | Niederberger Carrosserie & Fahrzeugbau AG | $382.35 |
May 03 | Valon Deda | $55.35 |
May 03 | Kobi&Alice | $109.85 |
May 03 | Adrian | $273.35 |
May 03 | Dominik | Undisclosed amount |