My team
My Story....
Hello Friends,
Once again I have the honor of running the Falmouth Road Race for The Facioscapulohumeral Muscular Dystrophy Society. The FSHD Society has invested over $10 million in research, contributing to the discovery of the genetic cause of FSHD and igniting interest by more than a dozen biotech companies in developing treatments. Please support me as I run for more educational support, clinical trials, and scientific research. This inherited condition has directly impacted our family as well as one in every 8,000 individuals or 870,000 people worldwide. There is no effective treatment or cure yet—but together there is always hope. Thank you for your continued support and generosity.
With gratitude, Heather
Description
Thank you for visiting my fundraising page!
I am so excited to be a member of TEAM FSHD!
YOU ARE LIGHTING THE WAY TO A CURE! Every dollar raised through the Falmouth Road Race helps those with FSHD live a better life and supports our work to advance the discovery of treatments and a cure for FSH Muscular Dystrophy (FSHD).
Recent donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| Jul 24 | FSH Society | $1,090.85 |
| Jul 03 | Cara Spang | $109.85 |
| Jun 19 | Denise & Brian Quinn of The Gilded Oyster | $273.35 |
| May 30 | Rob & Ann Quinn | $273.35 |
| May 29 | Anonymous | Undisclosed amount |
| May 22 | Brian Quinn | $109.85 |
