My Story…
Please visit Theodore's team page to make a donation: https://raceroster.com/events/2024/90510/run-for-ald-cure-the-boys/pledge/team/730050
Theodore and I were recently diagnosed with a rare genetic disease called X-linked Adrenoleukodystrophy (XALD), which can affect the brain, spinal cord, and adrenal glands. Theodore is currently asymptomatic; however, when and how symptoms present themselves are very unpredictable and vary between males and females, with it being much worse in young males.
There is no cure for ALD, but there are some treatment options, including stem cell transplant for childhood cerebral ALD. This fundraiser will help fund research at the University of Minnesota, which is home to one of the few ALD centers in the world. Your donation will help advance treatments (and maybe even a cure) for ALD. Thank you for your donation!
Donate to help Terry raise money for Run for ALD, Cure the Boys’s fundraising campaign.
Recent donors
Donation date | Donor name | Donation amount |
---|---|---|
Nov 23 | Marissa Pimentel | $107.35 |
Nov 23 | Melanie & Chuck | Undisclosed amount |
Nov 22 | Phyllis and Ted Bankier Tousman | Undisclosed amount |