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Our story…

Please consider donating to my team "Champions for Chaz," to raise funds for research for the rare disease adrenoleukodystrophy (ALD). 100% of the funds raised from the 7th Annual Run for ALD will directly benefit the University of Minnesota's Leukodystrophy Center for ALD Research to support their research efforts for early identification, more effective therapy and treatment options, and hopefully one day a cure for this devastating disease.

My son Chaz was diagnosed his senior year of high school. He is now a graduate from Michigan Technological University, with a degree in biomedical engineering. The disease has affected his spinal column and has limited his ability to walk. His version of the disease is adrenomyeloneuropathy (AMN).  This fundraiser directly benefits the ALD Research Fund at the University of Minnesota where Chaz goes for annual doctor appointments and tests.

We will be walking on Sunday, November 23 at 11 am (as a virtual team, since the event is in Missouri on Nov. 22) at Beverly Park in Beverly Hills, Michigan. You can help us by donating to Champions for Chaz, and/or registering to walk virtually with us in Beverly Hills (you will receive a tee shirt if you register by October 22). If you just want to donate (not register to walk), you are more than welcome to walk with us! You can also register to virtually run/walk in your own home town, just make sure you go through our Champions for Chaz team.

Thank all of you who donated in the past — every dollar makes a difference!

Help us raise money for Knockout ALD

Team members

Click on one of our team members below to make a donation.

Recent donors

Donation date Donor name Donation amount
Oct 10 Todd, Susie and Colin $54.10
Oct 07 The Christies Undisclosed amount
Oct 07 Cathy Hilfinger Undisclosed amount
Oct 06 Mark W. $27.48
Oct 06 Brown family $20.00
Oct 06 Sharon Grabowski Undisclosed amount