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FSHD Society

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The  FSHD Society is the world’s largest research-focused patient support organization. We work with people and organizations to identify the barriers slowing down the discovery of treatments and cure, then work together on solutions.

The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone.

Who We Are

The FSHD Society is the world’s largest advocacy and research organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy.

Teams

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Recent donors

Recent donors
Date Name Amount
Oct 04 Anonymous Way to go, Lauren! $27.48
Oct 04 Lucas & Kayla Emmerich Undisclosed amount
Oct 04 Anonymous $27.48
Oct 02 Stacy H You’re awesome! $54.10
Oct 01 Anonymous $11.50
Oct 01 Anonymous Undisclosed amount
Sep 30 Run Leslie, runnnn!!!! $107.35
Sep 24 Alyse and Jeff Kalmon $63.17
Sep 24 Mark and Kim Passi Run Lauren Run! Undisclosed amount
Sep 24 Briana and Jordan Lee Go Lauren!! Proud of you! $22.15