My Story…
Raising money for Fighting Blindness Canada is foundation that is close to my heart, this year my son was diagnosed with a rare inherited condition called X Link Juvenile Retinoschisis which could potentially lead to loss of sight or detachment of the retina, due to the retina layers slowly pulling apart because of a mutation of the gene on the x chromosome. Which normally produces the protein needed for retinal health .
The more funding and awareness of this condition the better odds he will have of this association coming up with a cure for him and everyone else who is affected with XLRS.