My Story…
We are so excited to have Nolan's team come together to support his favorite community, the NF community! Nolan was diagnosed with Neurofibromatosis Type 1. NF comes with a lot of unknowns. But we have experienced a wonderful community of providers and other NF families who all care as much as we do about working towards more treatment options, more resources, more understanding of NF. Nolan was diagnosed with a tumor on his liver at the age of 5. "Bob the Blob" has behaved and caused no issues. However, we discovered a 2nd tumor at the base of his spinal cord last fall and "Tommy the Tumor" has not been as well behaved. When we were told we were eligible for a drug developed specifically for kids with NF, we immediately knew this was only made possible because of events like this NF walk and the powerful voices of the NF community advocating for new treatments. We are so thankful Nolan has this drug as an option! He is a Fighter!
Donate to help Nolan raise money for #NFStrong-Memphis,TN’s fundraising campaign.