My Story…
I am running for Team Valeria at this year’s Falmouth Road Race 2025 in memory of my daughter Valeria, who was taken from us far too soon at just three years old.
Valeria was born with an ultra rare, non-inherited genetic mutation on the KCNT1 gene. Many young children are born with such de novo mutations, facing some of the most devastating diseases. Valeria - the Valeria Foundation, we want to change that.
We are currently working with research teams at Yale School of Medicine to develop better models that will enable more effective and personalized therapies for children with ultra-rare diseases.
Thank you so much for your support. A huge thank you to Team Valeria for your incredible dedication—this special weekend allows us all to honor Valeria, her impact on our lives, and the difference she has made in this world.
Together, we run for Valeria. Together, we create hope.
Description
Thank you so much for your generous donation to the Valeria Foundation!
Recent donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| Oct 01 | Michael Lurie | $2,864.40 |
| Aug 22 | Schenkel Alice&Köbi | $250.46 |
| Aug 22 | Tanti Grit | $62.98 |
| Jul 29 | Stride for Stride | $246.10 |
| Jul 29 | Anonymous | Undisclosed amount |
| Jun 13 | Tom Riherd | Undisclosed amount |
| May 07 | Alyssa Sakmar | $109.85 |
| Feb 05 | Lory & Paul | $218.85 |