GO TEAM NF NORTHEAST!
Hi! I am so excited to be running The 2025 Falmouth Road Race this year with NF Northeast! This race is one of my favorite days of the year, and both this day and NF Northeast hold a special place in my heart.
I was diagnosed with Neurofibromatosis (NF) when I was 18 months old. When I was 14 years old, my doctors at Boston Children's Hospital noticed a slight droop in my right eye, which led to an MRI scan where the doctors found a benign brain tumor. I continued getting routine scans to monitor the tumors growth. When I was 17, I had brain surgery to remove about 50% of the tumor.
At 21, I started having seizures. These seizures were unexpected. My doctors at Boston Children’s helped me through undoubtedly the scariest time in my life. Today I am 2 years seizure free!
I realized that although that was a very scary time in my life, my experience was relatively mild compared to the daily challenges faced by many others living with NF.
For this reason, I love running with NF Northeast to raise awareness and run for those with NF who are unable to do so themselves.
Please consider donating to my fundraising page to help spread awareness of NF and continue research to one day find a cure. I’m incredibly grateful for your support and generosity.
Thank you!
Description
Thank you for visiting my fundraising page for the 2025 Falmouth Road Race - supporting Neurofibromatosis Northeast!
More than 100,000 Americans are living with neurofibromatosis, and it affects over 2 million people worldwide. Symptoms can differ greatly in occurrence, severity, and age of appearance between patients. This makes NF difficult to identify and diagnose. If NF is suspected, genetic testing is typically the most appropriate way to diagnose it.
Your donation is fully tax-deductible, as Neurofibromatosis Northeast is a 501c3 non-profit organization (EIN #04-3013709).
To learn more about Neurofibromatosis Northeast visit their website at: https://nfnortheast.org
Recent donors
Donation date | Donor name | Donation amount |
---|---|---|
Aug 06 | Electra & Bryce | $55.35 |
Jul 17 | Nicole Gree | $55.35 |
Jul 15 | Anonymous | Undisclosed amount |
Jul 14 | Anonymous | Undisclosed amount |
Jul 11 | Joe Nowotarski | $55.35 |
Jul 10 | Ryan Bredin | $28.10 |
Jun 10 | Mackenzie Evans | Undisclosed amount |
Jun 01 | Julia Steponaitis | $55.35 |
May 23 | Tara Curry | Undisclosed amount |
Apr 19 | Anonymous | Undisclosed amount |