My Story…
We were given 2 weeks notice that there was a chance might have Down syndrome. This was on the back of a late term ultrasound given to my wife Melissa due to her massive pregnancy bump. It was at that ultrasound, where the tech asked if we had ever had the amniocentesis test. Oh ohh, WTH is going? We were sent for a level 2 ultrasound because the level 1 just wasn’t cutting it. That was where we were delivered the gut to the punch. Your baby will likely have Trisomy-21 followed by the obligatory genetic testing questions. We had learned that Violet likely had a condition known as Duodenal Atresia or more commonly known as Double Bubble. This is where the duodenum is blocked or restricted which would cause no fluids to transfer through baby and mum. Not a Doctor so not entirely sure. In any event we knew our lives were going to change.
When Violet popped out I am embarrassed to say I looked for the Down syndrome before I looked at Violet. The millisecond that I looked for the diagnosis before the baby will stay with me forever. The rest of my life I have never looked at the diagnosis. I look at Violet. The support we got from First Call was paramount to our longterm view of Down syndrome. Sarah Cullen and the team at first call were an absolute God send. When we met with Dr. Crocker he took Violet and did his thing uttering words in a way that only he could “you have a good one”. We didn’t have any clue how our lives would change or the relationships we would forge as a result of being on this journey. I have taken so much from the community and now it’s time to give back.
Description
In August I will be running in the 2025 ASICS Falmouth Road Race to raise funds and promote the acceptance and inclusion of individuals with Down syndrome.
My goal is to raise as much as I can to support the MDSC's mission and I’m asking for your help! Will you join with me by making a tax-deductible donation? Your support will bring me one step closer to achieving my fundraising goal and will help the MDSC to continue to reach its ultimate goal—to ensure that all individuals with Down syndrome are valued, included, and given the opportunity to pursue fulfilling lives.
If you would like to make an online donation, please click above on my fundraising page. If you would prefer to donate by check, you can mail a check, payable to MDSC to:
MDSC
20 Burlington Mall Road, Suite 261
Burlington, MA 01803
Your donation will make a difference in the lives of people with Down syndrome and their families!
Thank you!
Recent donors
Donation date | Donor name | Donation amount |
---|---|---|
Aug 18 | Bob and Anne Marie | $28.10 |
Aug 16 | Cassy Cahill | $28.10 |
Aug 16 | Violet, Zayne and Missy | $55.35 |
Aug 16 | John Morrison | Undisclosed amount |
Aug 16 | Kim | $55.35 |
Aug 16 | The Gray’s | $28.10 |
Aug 04 | Brian, Steph and the Lads!! Xx | $55.35 |
Aug 04 | Paul Kelliher | $55.35 |
Aug 04 | Shahram Shawn Omid | $55.35 |
Aug 04 | Anonymous | Undisclosed amount |