My Story…
In February 2026, I’ll be spinning my legs and heart out once again as part of the #Spin4Mito — this time marking just over a year since Evan’s passing. It’s still hard to believe he’s gone; the loss remains surreal, and I miss him every single day.
Evan’s spirit continues to inspire everything I do. His strength, compassion, and resilience live on in the mission we made together — to support families, raise awareness, and drive research that improves the quality of life and outcomes for those impacted by mitochondrial disease.
By supporting this ride, you’re helping us honour Evan’s legacy and bring hope to others facing this devastating disease. Every contribution fuels progress toward a future where families like ours have better answers, better treatments, and brighter days ahead.
Recent donors
| Donation date |
Donor name |
Donation amount |
|
Nov
13
|
Blaine Penny
|
$267.96
|