I Run to Cure CF!
This year, I’m running my 6th half marathon, and once again I’m running for a cause that has truly changed my life, the Western Pennsylvania Cystic Fibrosis Foundation.
My connection to the cystic fibrosis community started because of a friend. At first, I simply wanted show up and supported with their fundraisers by donating or buying merch. However, through my profession I received an amazing opportunity to support the Head of Rare Disease for over 3 years. One of the specific diseases we support is Cystic Fibrosis, so I’ve had a special privilege of seeing this space from unique perspectives.
Witnessing the strength of patients, the dedication of families, the relentless passion of those working every day to create better outcomes and brighter futures.
There is something incredibly special about the cystic fibrosis community. Rare disease spaces often bring together some of the most compassionate, resilient, and selfless people you will ever meet. The individuals who live with cystic fibrosis, and those who stand beside them, inspire me constantly. Their courage turns ordinary days into acts of perseverance most of us never have to think about.
Why this matters: 5 important facts about cystic fibrosis:
1. Cystic fibrosis (CF) is a progressive, genetic disease that affects the lungs, pancreas, and other organs, making it difficult to breathe and properly digest food.
2. CF is caused by a mutation in the CFTR gene, which leads to thick, sticky mucus building up in the body.
3. More than 40,000 people in the United States live with CF — and over 105,000 people worldwide.
4. There is currently no cure for CF. While treatments have advanced tremendously, they are the result of decades of research funded by donations and advocacy.
5. The median predicted survival age has more than doubled over the past few decades, a direct result of research, education, and fundraising efforts driven by this very community. Allowing more children to live into adulthood.
As you see this disease space is supported on education, research, and fundraising, because every advancement toward better treatments and ultimately a step towards a cure, fueled by people who chose to show up, give, and believe.
What began as support through friendship and work has become deeply personal for me. I now volunteer whenever extra hands are needed because I genuinely believe in this community and the mission that surrounds it. It feels like an honor to play even a small role in supporting a disease and a group of people who give so much strength and perspective to the world.
Every mile I run is a reminder of that honor.
If you’re able to donate, know that your support goes far beyond race day. It helps fund research, resources, and hope for individuals and families living with cystic fibrosis every single day.
Thank you for supporting me, this journey, and a community that means more to me than I can fully put into words. 💜
To show my additional support to this amazing organization, I am matching donations up to $500!! Help me beat my goal!! 💜
Help me reach my goal!!
Description
Cystic fibrosis is a rare, genetic disease found in about 40,000 people in the U.S. causing persistent lung infections and limiting the ability to breath over time. Those living with this disease are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers --all struggling each day just to breathe and live normal, healthy lives.
While there has been significant progress in treating this disease, there is still no cure and too many lives are cut far too short. By participating in the Pittsburgh Marathon on behalf of the Cystic Fibrosis Foundation, I run to help add tomorrows to the lives of all people living with cystic fibrosis today. Please make a difference and support me by donating to my fundraising campaign today!
Then please consider joining the team! For more information - reach out to Megan Rula - mrula@cff.org
Recent donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| Mar 11 | Anonymous | $27.48 |
| Mar 11 | Megan | $54.10 |