My Story…
The National CMV Foundation is the driving force in the fight against congenital cytomegalovirus (CMV)—the leading infectious cause of birth defects and developmental disabilities in the United States. When a pregnant person catches CMV, the virus can cross the placenta and infect the growing fetus. When a fetus is infected in-utero, this is called congenital CMV. Minnesota was the first state to add CMV testing to the newborn screening for all babies in 2023. Children with cCMV are at risk for hearing loss that can develop or progress at any point during childhood.
Because of this advancement we learned at only two weeks old that Taylor tested positive for Congenital CMV. We were able to get additional testing and screening done quickly and her hearing is checked every few months to ensure she is not experiencing hearing loss.
Prior to Taylor's diagnosis we had never heard of Congenital CMV and had no idea I was at risk of contracting it due to being immunocompromised. Research and education for expecting mothers is something that could help prevent cases of congenital CMV. Providers are not educating mothers on prevention and mitigation.
I am raising money for the National CMV foundation so other families also have access to early testing and care; early detection increases positive childhood outcomes.
Description
Support National CMV Foundation in its 2026 Medtronic Twin Cities Marathon Weekend fundraising campaign.
The mission of the National CMV Foundation is to prevent pregnancy loss, childhood death, and lifelong disability caused by congenital CMV (cCMV).
Your donation directly fuels advocacy efforts that empower children and families with the education, resources, and quality care they need when facing a cCMV diagnosis.
Recent donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| Jun 28 | M&M Gagan | $107.35 |
| Jun 26 | Team Taylor | $107.35 |
| Jun 25 | Guy and Leah sporer | $107.35 |
| Jun 25 | Bre, Mike and Hank Schlick | $107.35 |