My Story…
Fourteen years ago, and just three months into parenthood, we faced every parent’s worst fear and our world changed forever. We learned that our baby, Khoy, had hydrocephalus, a condition with no cure. The only treatment option was immediate brain surgery. And while that surgery saved his life, it didn’t cure his condition. We were told he may need additional brain surgeries throughout his lifetime, and every question we asked was met with, “We’ll have to wait and see.” It was the most frightening moment of our lives.
Through it all, your prayers and support carried us. Today, Khoy continues to overcome obstacles with strength, resilience, and God’s grace. He is our greatest blessing and our biggest why.
Hydrocephalus affects over 1 million people in the U.S. and can occur at any age. Current treatments rely on brain surgery, and shunts frequently fail, often requiring multiple surgeries over a lifetime.
That’s why I’m running my first marathon, the 50th Anniversary Grandma’s Marathon, as part of the HA Endurance Team. This race is extra special for me because it allows me to combine two passions: raising awareness about hydrocephalus and running. And what better way to debut my first marathon than by running miles with a purpose?
I’m running to raise awareness, fund research, and support the Hydrocephalus Association’s mission to improve lives and work toward a cure.
Your donation fuels this mission. If you’re unable to give, a simple share helps more than you know.
Thank you for supporting my run, this cause, and families like ours.
Together, we run for a cure. 
Description
Founded in 1983 by the parents of children with hydrocephalus, the Hydrocephalus Association (HA) is the nation’s largest and most widely respected organization dedicated to hydrocephalus.
Hydrocephalus can affect anyone, at any age. This life-altering and potentially life-threatening condition occurs when cerebrospinal fluid (CSF) builds up abnormally, putting pressure on the brain. The most common treatment is brain surgery to implant a shunt, a device that helps drain excess fluid. However, shunts are not a cure—they frequently fail, often requiring multiple brain surgeries over a patient’s lifetime, sometimes more than 100.
You can make a difference. I am training for and running the 50th Anniversary Grandma's Marathon to support the Hydrocephalus Association (HA), the leading nonprofit organization dedicated to funding critical research, raising awareness, and providing support for the over 1 million people in the U.S. living with hydrocephalus. Your donation to my fundraiser will not only fuel my journey but also help HA advance its mission to improve lives and find a cure.
Together, we can bring hope to those affected and drive progress toward better treatments and, ultimately, a cure.
Recent donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| Dec 03 | Steed & Shankle Family Blend | $54.10 |
| Dec 02 | Rickmond Family | $107.35 |
