My Story…
Hi everyone! I am running my first marathon as a way to help raise awareness of congenital CMV (cCMV). My son, Logan, was born with cCMV in 2017. He had to be delivered at 27 weeks due to fetal growth restriction and weighed only 1lb 2oz at birth. He was severely affected by cCMV and had to be intubated and placed on mechanical ventilation immediately after delivery. He was a strong fighter and spent 4 grueling months in the NICU at UMass Memorial Medical Center. Despite early initiation of antiviral therapy, slow improvement in his respiratory status, and the assistance of many consulting subspecialties, Logan ultimately succumbed to his infection and passed away in my arms in October of 2017. My wife and I knew nothing about congenital CMV before Logan was born. We didn’t know our family was at risk. We didn’t know there were methods to help prevent the spread of CMV during pregnancy. We could not protect or advocate for our son because we were not aware of the disease until after it was too late. Now, it is our mission to help prevent other families and their babies from ever having to go through the hell we had to endure. Please consider donating to the National CMV Foundation so we can help spread awareness of cCMV on a national level and reach families today!
Description
The mission of the National CMV Foundation is to prevent pregnancy loss, childhood death, and lifelong disability caused by congenital CMV (cCMV).
Your donation directly fuels advocacy efforts that empower children and families with the education, resources, and quality care they need when facing a cCMV diagnosis.
Recent donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| Apr 03 | Peter Colleran | $107.35 |