Cystic Fibrosis Canada

We were founded by parents of children with cystic fibrosis in 1960. Since then, we’ve worked closely with the cystic fibrosis community to dramatically change the cystic fibrosis story, for the better. But we’re not done yet.

New drugs are available and can help many people with cystic fibrosis live longer and healthier lives than ever before. But others don’t see that same promising future. 

We celebrate our 65-year history and the extraordinary achievement of having doubled life expectancy for Canadians living with cystic fibrosis. We’ve contributed to the global body of CF knowledge, funding research achievements such as mapping the gene that causes cystic fibrosis in 1989. And we’ve advanced access to life-changing CF medicines in Canada through relentless advocacy and government relations work. For most young children diagnosed in the next few years, their experience with cystic fibrosis will be different, and most likely a more hopeful story. But today, there is still an immense burden for many Canadians, and we work hard on their behalf.  

Yes, we’ve come a long way. Many Canadians are living healthier, longer lives. Yet, there is no cure. Some still face an immense daily burden and others can’t benefit from the new treatments we helped bring to this country. We are working to that day when all Canadians with cystic fibrosis can live healthier, fuller lives with your help.