My Story ...
I had little knowledge of Neurofibromatosis when my daughter Emma was diagnosed as a toddler. That has changed. Through difficult times, including eye procedures, brain surgery, and Epilepsy related to NF, I have watched Emma persevere. She is strong,smart, and faces every day with an open heart. I run for her and all of the people that are affected by Neurofibromatosis. Thank you to family and friends who are willing to donate to NF Northeast and keep the funds coming to eradicate this someday. Much love. -Carolyn
Description
Thank you for visiting my fundraising page supporting Neurofibromatosis Northeast through the 2026 Falmouth Road Race!
Neurofibromatosis Northeast is dedicated to improving the lives of individuals and families affected by neurofibromatosis (NF), a genetic condition that causes tumors to grow on nerves throughout the body.
Through education, support programs, advocacy, and community connections, Neurofibromatosis Northeast helps families navigate the challenges of NF while working toward better treatments and a cure.
Your donation helps provide vital resources and brings hope to the NF community.
Together, we are making a difference for everyone affected by NF.
All donations are tax-deductible.
Neurofibromatosis Northeast is a 501(c)(3) nonprofit organization (EIN #04-3013709).
Learn more:
https://nfnortheast.org