My team
My Story…
For the past 6+ years, I’ve had the privilege of working in the Duchenne muscular dystrophy (DMD) space as a corporate communications professional. During that time, the Duchenne community has profoundly changed my life. DMD is a genetic rare disease characterized by progressive muscle degeneration and weakness. It is caused by a mutation in the dystrophin gene, which prevents the body from producing dystrophin—a protein that helps keep muscle cells intact.
I have learned so much from individuals living with Duchenne, like Michael C., Charley S., Eytani G., Gavriel R., Jake M., and their incredibly compassionate families as well as the dedicated health care providers who support them every day. Their strength, resilience, and determination in the face of enormous challenges is nothing short of extraordinary.
I’m running this race in honor of this community, to support the work of Jett Foundation, and to help fuel continued progress for people living with Duchenne. Every mile I run is a small tribute to their courage, and every donation helps support transformative programming, accessible vans, educational materials and more! Thank you for considering a gift to support Jett Foundation and my participation in the Falmouth Road Race and for standing with the Duchenne community. Your support truly makes a difference.
Description
Thank you for supporting me as a Team Jett Athlete. Help me reach my goal by race day, August 16th, 2026!
Duchenne muscular dystrophy (DMD) is the most common fatal pediatric disorder. This progressive neuromuscular disorder leads to a loss of motor, pulmonary, and cardiac function, ultimately resulting in premature death.
Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.
Community Programs & Resources:
Camp Promise: A free, one-week summer camp offered at seven (7) locations nationwide for youth and young adults with rare neuromuscular disorders.
Jett Giving Fund: A vital assistance program with three branches:
The Accessible Vehicle Fund helps families obtain safe, accessible transportation.
The Emergency Fund provides grants to families facing unexpected, emergency situations.
The Equipment Assistance Fund assists families with small accessibility or medical items not covered by insurance or that are too expensive.
Family Workshops: A national educational workshop series that allows families to learn about Duchenne care, resources, and treatments from local clinicians, experts, and industry partners.
National Community Ambassador Program: This program offers parents, friends, and family members of individuals impacted by Duchenne the opportunity to share resources, educate within their community, and facilitate local support groups and events for parents and families.
Falmouth Road Race athletes activate their muscles in support of Jett Foundation's work, bringing impactful awareness & raising funds for our community.
Thank you for supporting Jett Foundation's dedicated athletes at the Falmouth Road Race! We can't do this without you.
Jett Foundation, Inc. is a 501(c)3 registered tax-exempt nonprofit organization. Our Federal Tax ID is 04-3563445.
Recent donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| May 19 | Joseph and Maureen Laurin | $100.00 |
| May 17 | Mary Tambor | $109.85 |
| May 17 | Jennifer C. Braceras | Undisclosed amount |
| May 17 | Cameron & Martha McKennitt | Undisclosed amount |
