My team
My Story…
I’m running the Falmouth Road Race in support of the Jett Foundation and my nephew, Walker.
Walker had just had his first birthday when he was diagnosed with Duchenne muscular dystrophy (DMD), a progressive neuromuscular disorder. Today, he’s 6 years old- and he continues to amaze us every day.
He loves all sports (especially soccer) and never misses a chance to talk about Cristiano Ronaldo. He’s curious, vibrant, silly, and incredibly loving, and I’m so proud to be his uncle.
Because of ongoing research and support from organizations like the Jett Foundation, families like ours have real hope for the future.
If you’re able, please consider making a donation to support this cause and help move us closer to better treatments- and ultimately, a cure.
Thank you so much for your support.
Description
Thank you for supporting me as a Team Jett Athlete. Help me reach my goal by race day, August 16th, 2026!
Duchenne muscular dystrophy (DMD) is the most common fatal pediatric disorder. This progressive neuromuscular disorder leads to a loss of motor, pulmonary, and cardiac function, ultimately resulting in premature death.
Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.
Community Programs & Resources:
Camp Promise: A free, one-week summer camp offered at seven (7) locations nationwide for youth and young adults with rare neuromuscular disorders.
Jett Giving Fund: A vital assistance program with three branches:
The Accessible Vehicle Fund helps families obtain safe, accessible transportation.
The Emergency Fund provides grants to families facing unexpected, emergency situations.
The Equipment Assistance Fund assists families with small accessibility or medical items not covered by insurance or that are too expensive.
Family Workshops: A national educational workshop series that allows families to learn about Duchenne care, resources, and treatments from local clinicians, experts, and industry partners.
National Community Ambassador Program: This program offers parents, friends, and family members of individuals impacted by Duchenne the opportunity to share resources, educate within their community, and facilitate local support groups and events for parents and families.
Falmouth Road Race athletes activate their muscles in support of Jett Foundation's work, bringing impactful awareness & raising funds for our community.
Thank you for supporting Jett Foundation's dedicated athletes at the Falmouth Road Race! We can't do this without you.
Jett Foundation, Inc. is a 501(c)3 registered tax-exempt nonprofit organization. Our Federal Tax ID is 04-3563445.
Recent donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| Apr 29 | Callan Johnson | $28.10 |
| Apr 29 | Trina&Ed Ferdinando | $164.35 |
| Apr 29 | Sarah, Luca & Poppie | $109.85 |
