Help The Mannke Family raise money

We’re getting ready to run Falmouth again this year ,myself, David, and Natalie are running to raise funds for The Genesis Foundation for children at MGH. This organization helps support children and their families with genetic disorders. 

As many of you know, Ronan was diagnosed last year with HHRH. He’s taking 10 tablets a day, and he handles it all with incredible strength and resilience.

Following his diagnosis, our whole family was tested. Bridget, who just turned 11, was also diagnosed with HHRH. At the time, we didn’t know what this would mean for her. After recently experiencing pain  with walking and seeing the specialist, she has now started her own course of medication. 

Because of Ronan’s courage in facing this diagnosis first, he’s helped pave the way for Bridget and she’s doing amazingly well adjusting to everything.

We’re running not just for them, but to help support research and care for children facing genetic disorders. 

Any support in helping us fundraise means so much to our family.

Thank you