My Story…
This year marks my fourth time running the Falmouth Road Race as part of Team Jett, and I’m honored to continue supporting the Jett Foundation and the Duchenne muscular dystrophy community.
I am running in honor of my nephew, Walker, who was diagnosed with Duchenne muscular dystrophy (DMD) right after his first birthday. Duchenne muscular dystrophy (DMD) is the most common fatal pediatric disorder. This progressive neuromuscular disorder leads to a loss of motor, pulmonary, and cardiac function, ultimately resulting in premature death.
Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.
While there is currently no cure, advances in research, treatments, and supportive care are helping individuals with DMD live longer and fuller lives than ever before. Organizations like the Jett Foundation play a critical role in supporting families through education, advocacy, financial assistance, and community programs.
Running this race is deeply personal to me. Every mile is for Walker and for every child living with Duchenne. Being able to run, move my legs freely, and cross the finish line is something I will never take for granted. I’m proud to run in support of those who may one day lose that ability and to help raise awareness and funding for families impacted by Duchenne.
Thank you so much for supporting Team Jett and helping make a difference.
Description
Thank you for supporting me as a Team Jett Athlete. Help me reach my goal by race day, August 16th, 2026!
Duchenne muscular dystrophy (DMD) is the most common fatal pediatric disorder. This progressive neuromuscular disorder leads to a loss of motor, pulmonary, and cardiac function, ultimately resulting in premature death.
Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.
Community Programs & Resources:
Camp Promise: A free, one-week summer camp offered at seven (7) locations nationwide for youth and young adults with rare neuromuscular disorders.
Jett Giving Fund: A vital assistance program with three branches:
The Accessible Vehicle Fund helps families obtain safe, accessible transportation.
The Emergency Fund provides grants to families facing unexpected, emergency situations.
The Equipment Assistance Fund assists families with small accessibility or medical items not covered by insurance or that are too expensive.
Family Workshops: A national educational workshop series that allows families to learn about Duchenne care, resources, and treatments from local clinicians, experts, and industry partners.
National Community Ambassador Program: This program offers parents, friends, and family members of individuals impacted by Duchenne the opportunity to share resources, educate within their community, and facilitate local support groups and events for parents and families.
Falmouth Road Race athletes activate their muscles in support of Jett Foundation's work, bringing impactful awareness & raising funds for our community.
Thank you for supporting Jett Foundation's dedicated athletes at the Falmouth Road Race! We can't do this without you.
Jett Foundation, Inc. is a 501(c)3 registered tax-exempt nonprofit organization. Our Federal Tax ID is 04-3563445.
Recent donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| May 16 | Anonymous | Undisclosed amount |
| May 15 | Anonymous | $55.35 |
| May 15 | Autumn Davis | Undisclosed amount |