My team
My Story…
This August, I am taking on the 7-mile course of the ASICS Falmouth Road Race, and every step I take will be for my nephew. He is currently living with Duchenne muscular dystrophy, a progressive and fatal genetic disorder that weakens the muscles over time. Seeing his resilience inspires me every day, and running this race is my way of turning that inspiration into action.
I am proud to be running as a Team Jett Athlete to support the Jett Foundation. The Jett Foundation does incredible work providing direct, life-changing support to families like ours. From funding accessible vehicles and emergency financial grants to running Camp Promise—a free summer camp tailored for kids and young adults with neuromuscular disorders—they ensure that individuals with Duchenne can live their lives to the absolute fullest.
My goal is to raise $1,500 to help fund these vital programs. Please consider making a donation to support my run and empower families impacted by Duchenne. Thank you so much for your generosity and support!
Description
Thank you for supporting me as a Team Jett Athlete. Help me reach my goal by race day, August 16th, 2026!
Duchenne muscular dystrophy (DMD) is the most common fatal pediatric disorder. This progressive neuromuscular disorder leads to a loss of motor, pulmonary, and cardiac function, ultimately resulting in premature death.
Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.
Community Programs & Resources:
Camp Promise: A free, one-week summer camp offered at seven (7) locations nationwide for youth and young adults with rare neuromuscular disorders.
Jett Giving Fund: A vital assistance program with three branches:
The Accessible Vehicle Fund helps families obtain safe, accessible transportation.
The Emergency Fund provides grants to families facing unexpected, emergency situations.
The Equipment Assistance Fund assists families with small accessibility or medical items not covered by insurance or that are too expensive.
Family Workshops: A national educational workshop series that allows families to learn about Duchenne care, resources, and treatments from local clinicians, experts, and industry partners.
National Community Ambassador Program: This program offers parents, friends, and family members of individuals impacted by Duchenne the opportunity to share resources, educate within their community, and facilitate local support groups and events for parents and families.
Falmouth Road Race athletes activate their muscles in support of Jett Foundation's work, bringing impactful awareness & raising funds for our community.
Thank you for supporting Jett Foundation's dedicated athletes at the Falmouth Road Race! We can't do this without you.
Jett Foundation, Inc. is a 501(c)3 registered tax-exempt nonprofit organization. Our Federal Tax ID is 04-3563445.
Recent donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| Jun 06 | Kristen D | $28.10 |
| Jun 05 | Kora and Max Powers | $55.35 |
| Jun 05 | Lowen and Miles | $109.85 |
