Help us raise money

We are so excited to have Nolan's team come together to support one of his favorite communities, the NF community! Nolan was diagnosed with Neurofibromatosis Type 1 at the age of 1 year old. NF comes with a lot of unknowns. But we have experienced a wonderful community of providers and other NF families who all care as much as we do about working towards more treatment options, more resources, more understanding of NF. 

Nolan was diagnosed with a tumor on his liver at the age of 5. "Bob the Blob" has behaved and caused no issues. However, we discovered a 2nd tumor at the base of his spinal cord in the fall of 2024 and "Tommy the Tumor" has not been as well behaved. NF tumors are tricky and there are not a lot of options to remove them. When we were told we were eligible for a drug developed specifically for kids with NF, we immediately knew this was only made possible because of the relentless advocacy of parents and families in the NF community. The #NF Strong Walk is one of many ways development of these types of drugs are available for Nolan. We are so thankful for this drug and the hope we have because of it! We walk to end NF. We walk because Nolan is a Fighter!