My Story…
Robert is a bright and happy young boy recently diagnosed with X-ALD. His brother recently passed from this same disease, and any funds raised would further research for children like him and Jackson.
He is not currently symptomatic but MRI confirmed there is active demyelination and without treatment, he would quickly develop irreversible brain damage. Even with a stem cell transplant the damage is permanent, but the treatment will prevent further damage to his brain.
Donate to help Danielle raise money for Run for ALD, Cure the Boys’s fundraising campaign.