Contact
- Name
- National Organization for Rare Disorders
- Phone
- 732-278-6403
- events@rarediseases.org
Raise money for National Organization for Rare Disorders
The National Organization for Rare Disorders (NORD®) was founded after the passage of the Orphan Drug Act of 1983 (ODA) to formalize the coalition of patient advocacy groups that were instrumental in passing that landmark law. Since then, NORD has been a national steward and a steadfast partner, helping those who battle and care for people with rare diseases feel seen, heard, supported, and connected. We’re a full-service, mission-driven, and independent nonprofit reimagining a future where every person with a rare disease and their families live their best lives.
