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Dystrophic Epidermolysis Bullosa Research Association of America (debra of America)

Raise money for Dystrophic Epidermolysis Bullosa Research Association of America (debra of America)

The Dystrophic Epidermolysis Bullosa Research Association of America (debra of America) is the only U.S. nonprofit providing all-inclusive support to the EB Community, through funding research for a cure and by providing free programs and services for those with: Epidermolysis Bullosa (EB) — "The Worst Disease You've Never Heard Of."

EB is a rare genetic connective tissue disorder that affects 1 out of every 20,000 births in the United States (approximately 200 children a year are born with EB). There is no treatment or cure. There are many genetic and symptomatic variations of EB, but all share the prominent symptom of extremely fragile skin that blisters and tears from minor friction or trauma.

MISSION STATEMENT

The mission of debra of America is to improve the quality of life for all people living in the United States with EB, their families, and caregivers through free programs and services while funding research to find a cure and treatments for Epidermolysis Bullosa.

Teams

Click on a team below to make a donation.

Recent donors

Recent donors
Date Name Amount
Apr 12 Kimberly Adams Love you Undisclosed amount
Apr 11 Ernest Armstrong have fun running uncle Ernie Aunt Mary $214.96
Apr 10 Steven Cady $54.43
Apr 09 Anonymous $27.68
Apr 08 Andrew Rinaldi $27.68
Jan 31 Stephanie Haddix $25.00
Dec 18 Elizabeth Hatala $27.68
Dec 16 Jean and Tim Kilgore $54.43
Dec 10 Karen Kellogg $27.68
Dec 09 Stephanie Recht You can do this!!! Happy to train with you anytime!! $54.43