Help Andrew raise money
For participating in Charity Partner Registration and Fundraising - Cincinnati Flying Pig Marathon Weekend 2019
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My Story…
As some who come here know my story of my youngest son for those who do not I want to tell you about the day that completely changed my life.
Shortly after our son's birth, we noticed skin was missing on his body on his hand feet. Long story short our son was sent to 2 different NICUs in a span of about 10 hours and was diagnosed with a very rare genetic skin disease called Epidermolysis Bollosa (EB). The disease causes the body to not produce a key protein that helps keep the layers of your skin together and attached to your body. Our son's skin can tear or blister like a burn with the slightest friction or trauma. There is no cure or treatment and our son is covered in protective bandages from head to toe to protect his skin and allow him to heal and prevent infections. We do daily bandage changes and pain management to allow him to live his best life and be as normal as possible. DEBRA has helped us and others so much and this is why I am raising money and running.
Donate to help Andrew raise money for Charity Partner Registration and Fundraising - Cincinnati Flying Pig Marathon Weekend 2019’s fundraising campaign.
Recent donors
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May
01
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Anonymous
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Undisclosed amount
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Apr
30
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Joyce Hall
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$54.43
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Apr
30
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Harlan Reichle
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$107.94
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Apr
28
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Anonymous
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Undisclosed amount
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Apr
26
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Joseph & Wendy Martin
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$107.94
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Apr
23
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Jamie Deighton
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Undisclosed amount
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Apr
20
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Jerry Carter
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Undisclosed amount
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Apr
18
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Ronald Jurgenson
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$107.94
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Apr
17
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Matt Thornton
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$54.43
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Apr
16
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Terri Mihlbauer
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$27.68
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