Help Andrew raise money
For participating in Charity Partner Registration and Fundraising - Cincinnati Flying Pig Marathon Weekend 2019
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My Story…
As some who come here know my story of my youngest son for those who do not I want to tell you about the day that completely changed my life.
Shortly after our son's birth, we noticed skin was missing on his body on his hand feet. Long story short our son was sent to 2 different NICUs in a span of about 10 hours and was diagnosed with a very rare genetic skin disease called Epidermolysis Bollosa (EB). The disease causes the body to not produce a key protein that helps keep the layers of your skin together and attached to your body. Our son's skin can tear or blister like a burn with the slightest friction or trauma. There is no cure or treatment and our son is covered in protective bandages from head to toe to protect his skin and allow him to heal and prevent infections. We do daily bandage changes and pain management to allow him to live his best life and be as normal as possible. DEBRA has helped us and others so much and this is why I am raising money and running.
Donate to help Andrew raise money for Charity Partner Registration and Fundraising - Cincinnati Flying Pig Marathon Weekend 2019’s fundraising campaign.
Recent donors
| Donation date |
Donor name |
Donation amount |
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Apr
16
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greg sullivan
I hope you win the race!
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$54.43
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Apr
16
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James Wittkofske
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$107.94
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Apr
16
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John Sluhan
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$107.94
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Apr
16
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Yvette Mayzes
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$27.68
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Apr
16
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Jane Starbuck
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$54.43
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Apr
12
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Kimberly Adams
Love you
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Undisclosed amount
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Apr
11
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Ernest Armstrong
have fun running uncle Ernie Aunt Mary
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$214.96
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Apr
10
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Steven Cady
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$54.43
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Apr
08
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Andrew Rinaldi
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$27.68
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