Support the Duchenne Warriors Foundation by participating in our Virtual Run (or Walk) Out Duchenne 5K. The virtual run raises funds to support our mission to end Duchenne muscular dystrophy, a fatal genetic disorder that slowly robs our children and loved ones of their muscle strength. Those with Duchenne are truly in a race against time as their muscles deteriorate further each day. When you join us at virtually you are supporting our vital work to help fund advancing research, care, and advocacy to help those with Duchenne live longer, stronger lives.
Join us. Every Step You Take Makes A Difference!
About Duchenne Warriors Foundation
Our mission is simple. We want to Cure Duchenne Muscular Dystrophy, a fatal genetic disorder that slowly robs our children and loved ones of their muscle strength. Those with Duchenne are truly in a race against time as their muscles deteriorate further each day. Please join us by supporting our vital work to help fund advancing research, care, and advocacy to help those with Duchenne live longer, stronger lives.
Registration fees
Virtual 5K - Shirt Option Closed
Run in Spirit; Support Duchenne Research ; Get an Event Shirt
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$25.00
Virtual 5K - No Shirt Closed
Run in Spirit; Support Duchenne Research ; Skip the Event Shirt
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$20.00
About Duchenne Muscular Dystrophy
Duchenne Muscular Dystrophy is a progressive, muscle-wasting disorder that affects every muscle in the body. DMD is a recessive genetic mutation that occurs on the X chromosome. As a result, it almost exclusively affects boys. Unfortunately for the boys who have been diagnosed with DMD, it is the most severe of all the muscular dystrophies:
- Boys with this disease are diagnosed early, usually between 3 and 5 years of age.
- They lose muscle function quickly; many boys are in wheelchairs by age 10-12.
- They die early, most boys with DMD do not live to their mid-20’s.
- Boys with DMD are unable to produce a functional dystrophin protein. Because they lack this protein, they first lose their skeletal muscle function, and then they lose their smooth muscle function (smooth muscles include the heart and diaphram).
- Duchenne is currently 100% fatal. There is no cure and no truly effective treatment. Occasionally, a young man with DMD may live into his early thirties, but he will be in a wheelchair, he will need assistance breathing and he will live with the constant risk of heart failure.
There is no cure for Duchenne, but there is HOPE. Research is promising, but funds are needed to get drugs into trial and time is not on our side. Our mission to Run Out Duchenne is to not only raise money that will go directly to medical research, but to raise awareness of the severity of this disease.
About Greenswell Events
About Greenswell Events
Greenswell Events is a professional organization that provides event management services, timing and equipment for triathlon, swimming, road running, trail running, and multi-sport events in Central Ohio and surrounding area. We specialize in being a turnkey event manager who can provide the services and equipment to organize your event. We pride ourselves in our consistency, and reliability, our personal touch, and our use of the latest timing technology to ensure accurate and quickly-posted results, both at the event, online and through our website.
For more information, visit us at www.greenswell.com
Contact information
- Event contact
- Tracy Studebaker
- tstudprem@yahoo.com
- Website
- Visit website
